LC, a worldwide network of lymphoma patient groups, was formed in 2002 and incorporated in 2010 with the express purpose of facilitating lymphoma patient organisations around the world to form a community that could support one another’s efforts in helping patients with lymphoma receive the care and support needed. LC is a not-for-profit organisation.
The need for a global coalition was recognised as a way of helping lymphoma organisations share resources, best practices, and policies and procedures. In addition, the need for a central hub of consistent as well as reliable current information was recognised. With this in mind, four lymphoma organisations started the LC. Today, there are 71 member organisations from 48 countries.
To free the world of lymphomas.
Our Mission is to:
- Be the global source for lymphoma facts and statistics
- Improve awareness and understanding of lymphomas
- Build capacity for new and existing lymphoma groups.
With the high degree of focus on “patient centricity”, the Lymphoma Coalition patient body who are the recipients of the behaviour driven by this term, defines it as the following:
- Engaging individuals with lymphoma, and their caregivers in all aspects of their care, tailoring support with the understanding that every patient is unique with a different set of complex needs that may change over time.
- Giving the lymphoma patient, and those close to them, a voice so that the focus of their care and needs are included throughout the decision-making process.
- Listening to and hearing the person affected by lymphoma respecting their culture, input, dignity, intelligence and capacity to make informed decisions about the impact on their lives and their care.
- Including patient organisations as active partners representing a patient’s emotional and psychosocial needs at every stage of care including; treatment, protocol development and by informing research throughout the clinical and treatment development continuum.
To learn about our patient charter, click here.
Recognize World Lymphoma Awareness Day on September 15th!
Contact your local lymphoma organisation to find out what is going on in your community.