Benefits of Joining the Lymphoma Coalition

Belonging to a larger community feels good, especially when we know that work being undertaken nationally can also provider a bigger voice on behalf of patients with lymphoma. Other benefits of membership are the:

  • Sharing of best practices among members. Best practices may include “how-to” toolkits, algorithms of care, policies and procedures, and resources from other member organisations, to name a few;
  • Provision of consistent as well as reliable current information including statistics and access on the different lymphomas (non-Hodgkin lymphoma, Hodgkin lymphoma and chronic lymphocytic leukaemia);
  • Ability as a larger community of lymphoma patient organisations to raise awareness about lymphomas through activities such as World Lymphoma Awareness Day and the Global Patient Survey;
  • Support given to member organisations in building capacity.

To find out more on how to become part of the Lymphoma Coalition, contact Karen Van Rassel, Executive Director at This email address is being protected from spambots. You need JavaScript enabled to view it..

 

Full Members of the Corporation shall consist of the following:

The founders of the Corporation, and those groups and members actively involved in the development of the Corporation as determined by the Board of Directors; and any organization that applies to the Corporation and has been accepted by the Directors which is:

(a)   recognized and/or registered as a non-profit organization under the laws of its jurisdiction;

(b)  primarily focused on lymphomas, with a minimum of 51% of its resources allocated to lymphoma programs and services;

(c)   committed to the Mission and Vision of the Corporation and confirmed by signing the Mission Statement;

(d)  committed to participating in the activities of the Corporation, such as Worldwide Lymphoma Awareness Day and attending the Annual General Meeting of the Corporation each year  and

(e)   committed to sharing information, materials and best practices with other Members.

Associate Members shall consist of those not-for-profit organizations that share the same goals as the Corporation, but which do not meet all criteria for Full membership in the Corporation, who have applied to the Corporation and have been accepted by the Board of Directors.  Associate Members may contribute to the development of the Corporation and may apply for Full membership in the Corporation.

Founding Members of the Coalition are the four members that started the Coalition, namely, Lymphoma Association- UK, Lymphoma Foundation Canada, Lymphoma Research Foundation - USA and Deutsche Leukamie & Lymphom-Hilfe eV, Germany and are Full Members.

Current Treatment Options

 

Treatment will vary depending on the exact type of lymphoma a person has, and how fast it is likely to grow and cause problems in the body. It will also depend on the extent of disease at diagnosis, the person's age and their general health.

 

Some lymphomas grow slowly and cause few troubling symptoms, and may not need to be treated urgently. Others grow more quickly and need to be treated as soon as they are diagnosed.

 

The main treatments are chemotherapy and radiation therapy.  Other types of treatment are also used.  Occasionally, a stem cell transplant is given to treat disease which has relapsed (come back), or where there is a high likelihood that the disease will relapse in the future.  The main options are used either alone or in combination.

World Lymphoma Awareness Day

 

World Lymphoma Awareness Day is held on September 15 every year and is a day dedicated to raising awareness of lymphoma.  Launched in 2004 and now an established date in the health calendar, WLAD provides a focus for doctors, nurses, patient support groups, patients and their families to join forces in a united campaign to inform the public about lymphoma, its signs and symptoms and how it affects lives of thousands of people around the world.

 

Why have WLAD?


Despite the fact that one million people worldwide live with lymphoma and nearly 1,000 people are diagnosed with this cancer every day, research shows:

 

  • 1. Less than 50 per cent of people know anything about this potentially life-threatening cancer
  • 2. Almost three quarters (74 per cent) of people do not know that lymphoma is a form of cancer

Through raised awareness of lymphoma, people around the world will better recognize the signs and symptoms, which leads to earlier diagnosis.

WLAD also provides a platform for individual countries to address local issues, for example lobbying government for funding or access to the most effective treatments.

 

 

WLAD 2010!

 

Wednesday, September 15, 2010 marks the 7th anniversary of WLAD, and we are excited for another year and opportunity to raise awareness for lymphoma worldwide.  Increased lymphoma awareness will allow people around the globe to better recognize the signs and symptoms, leading to earlier diagnosis and treatment, and ultimately resulting in better patient outcomes.

 

Lymphoma rates have been steadily increasing over the past few years globally, and especially in the younger population in certain countries.  Across the world, people are getting together to raise awareness and there are ways you can help.  Pass the torch - Know your Nodes!

 

Lymphoma is the 5th most common cancer worldwide and while screening and prevention for other cancers are making significant progress, lymphoma is still largely unfamiliar to the majority of the public and even some health care professionals.  The similarity of signs and symptoms to a common flu makes lymphoma harder to diagnose than many other cancers.

 

Conact your local organization for more information about how to get involved!

 

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IN THE NODE

Updates

 

The information on this website is for general use only. Please consult your physician if you think you may have lymphoma or
require more detailed information on the best course of treatment for you.

Our website does not host any form of advertisement. Last updated: 05/30/17. Copyright © 2017 Lymphoma Coalition. All rights reserved.