Hodgkin Lymphoma: Physical Issues with Greatest Impact on Sense of Well-Being
The 2014 LC Global Patient Survey highlighted that a number of physical issues had an impact on respondents’ sense of well-being. Respondents in all regions, with the exception of those with relapsed HL in Western Europe, noted fatigue as being a barrier that had greatly affected them. Although not among the highest rated physical barriers, fatigue is still a notable symptom for those with relapsed HL in Western Europe.
Suffering from fatigue changes patients’ lives. It may mean that they cannot work or, if they can, not at their usual capacity which could lead to financial hardship. This takes a toll on their normal daily activities as well and may, over time, create a sense of helplessness and have a negative impact on their sense of well-being.
Hair loss was a significant issue in all regions among respondents with HL who were in remission. Respondents in Latin America with relapsed HL noted hair loss as being a significant issue. It is not surprising that hair loss is an issue given the toxicity associated with the front-line treatments for HL, namely ABVD and BEACOPP. The impact of hair loss on a patient’s overall quality of life is enormous as it’s a physical and visible sign that the patient has cancer. Those around the patient may feel uncomfortable and not know what to say and so may ostracise the patient. There are also likely patients who may not want people to know they are undergoing treatment for cancer yet they have this obvious physical manifestation.
Physical Issues with Greatest Negative Impact on Sense of Well-Being: HL
These issues are very difficult for patients to deal with on their own. Consequently, it is extremely important that healthcare providers (HCPs) refer patients to organisations that can help. It is equally important that HCPs look for signs of concern among patients and ask questions to ensure they get the support they need.
LC understands that it may be difficult to dedicate the time required to do this, making the referral of patients to a local patient organisation, or the support services provided by the local medical community, all the more important.
This information was presented in the 2015 LeIP Report Card on Lymphomas.
In 2014, the LeIP Report Card on Lymphomas presented information on clinical trials and therapies that highlighted access issues around the world. The 2015 report card builds on that information by providing an overview of the changes in clinical trial availability and therapy access.
The Lymphoma Coalition’s (LC) goal for the 2015 LeIP Report Card on Lymphomas was to examine access to care through an algorithm of care lens for patients with lymphoma.
Download and view the 2015 LeIP Report Card on lymphomas here.