What is Lymphoma Coalition Europe (LCE)?
LCE is an umbrella organisation of lymphoma member organisations working across Europe, Turkey and Israel. It is a regional branch of the Lymphoma Coalition (a worldwide network of lymphoma patient organisations, registered under Canadian law in Mississauga, Ontario, Canada) with a principal place of business registered in Paris, France, under French law. The Lymphoma Coalition’s Board of Directors provides governance for LCE’s work across Europe, with one Board member nominated to provide oversight of LCE’s activities. Currently, Sarper Diler, Secretary, is the nominated Board member.
Structure and Membership Involvement
In its role as an umbrella organisation, LCE has a membership of about 40 national and local patient organisations from approximately 30 countries in Europe, plus Turkey and Israel, which are supported by LCE’s work and initiatives.
There are two types of member organisations provided for in Lymphoma Coalition’s by-laws (see article 4):
- Full members are not-for-profit organisations that share the goals of the Coalition and that are primarily focused on lymphoma, with 51% or more of their resources directed to lymphoma programmes and services.
- Associate members are organisations that share the goals of the Coalition, but that do not meet all the other criteria for full membership.
Full members have voting rights as set out in Lymphoma Coalition’s by-laws, while associate members do not.
LCE's Mission is to:
- Be the global source for lymphoma facts and statistics
- Improve awareness and understanding of lymphomas
- Build capacity for new and existing lymphoma groups.
- To ensure everyone affected by lymphoma in Europe has access to the best information, support, treatment and care, which is delivered in partnership with respected, valued, well-supported and professional patient organisations in each country.
- To improve outcomes for lymphoma by providing credible and reliable knowledge and insight across Europe and harnessing the expertise of member organisations to bring about systemic change.
- To deliver projects and services that bring a tangible benefit to lymphoma patients and the organisations that support them.
- To improve the lives and outcomes of lymphoma patients through supporting and coordinating effective and influential lobbying and advocacy campaigns.