Subtype Report: Cutaneous Lymphoma

Cutaneous lymphomas are a heterogeneous group of lymphomas that are often very difficult to diagnose. The symptoms of cutaneous lymphomas may resemble other skin conditions, which adds to the challenges of correctly diagnosing the disease. Patients have at times had to wait years before coming to a conclusive diagnosis.  Symptoms of cutaneous lymphomas are not only painful at times, but the effect on body image and confidence plays a huge part in the overall impact of this cancer. Even after treatment, concerns about body image, depression and loss of self-esteem are still acutely felt.

There are diverse treatment options for patients with cutaneous lymphoma, but access to treatment varies greatly by country as does the availability of a physician who specialises in cutaneous lymphomas. Although there are many therapies available to patients, none has resulted in reliable curative outcomes and often responses are short-lived. Clinical trials are limited.  More research is needed as patients need new treatments that provide durable remissions and better quality of life.

Patients with cutaneous lymphoma require a more holistic approach to care to meet their varied needs, from a multi-disciplinary team that is led by a specialist physician and includes support from a patient organisation.

 

Click here to view or download the report.

 

Cutaneous Lymphoma - A Patient's Guide

Working with the global Cutaneous Lymphoma Foundation (CLF), in 2019 LCE abridged and adapted CLF’s Cutaneous Lymphoma Patient’s Guide using additional material from Lymphoma Action. The guide is available here in the following languages:

Albanian Estonian  Latvian  Serbian 
Bosnian Finnish Lithuanian  Slovak 
Bulgarian         French Macedonian      Slovenian      
Croatian    German  Norwegian  Spanish 
Czech  Greek Polish  Swedish 
Danish  Hebrew  Portuguese     Turkish 
Dutch  Hungarian       Romanian   Ukrainian
English         Italian      Russian  

 

Global Database

Information by country, region and/or subtype on treatments, clinical trials and incidence/mortality rates.

Resource Library

Over 2,000 pieces of information on lymphoma diagnosis, treatment, research, support and lifestyle.

logo europe

IN THE NODE

Updates

 

The information on this website is for general use only. Please consult your physician if you think you may have lymphoma or
require more detailed information on the best course of treatment for you.

Our website does not host any form of advertisement. Last updated: 02/19/19. Copyright © 2018 Lymphoma Coalition. All rights reserved.