Lymphoma Coalition Member Organisations
Algeria - EL AMEL Association
L’Association EL-AMEL à été créée en Mars 1994 pour apporter aide et assistance aux personnes atteintes de cancer, surtout les plus démunies, pour défendre leurs droits et améliorer leur prise en charge.
Iraq - Leukemia Patient Care Organisation
The organisation was created in 2016 in Marrakech by haematologist-oncologists and patients. The creation of the association is supported by France Lymphome Espoir.
The organisation aims to:
• Help people with lymphoma.
• Carry out informative campaigns on what this disease is, and how the subtypes differ.
• Facilitate meetings and sharing of experiences between patients, families and medical professionals.
• Provide moral and material support to patients during their stay in hospitals and during treatment.
• Improve the conditions of care of patients.
• Cooperate with physicians and laboratories to inform lymphoma patients about new treatments and research.
Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for Cancer does this on an individual patient level - changing one life at a time - by providing people with the knowledge and tools to see their treatment process through; as well as on a larger scale - by noting issues highlighted by these individual cases and lobbying for policy change that will affect all of society.
Campaigning for Cancer will serve all South Africans regardless of age, sex, gender, insurance or health status, marital status, disability, ethnicity, religion, sexual orientation, conscience, belief, education, social or economic background. Our goal is to ensure that credible and reliable information and support regarding all facets of this disease and access to treatment during a patient’s journey are readily available to the patient and the general public.
The Leukaemia Foundation is the only national not for profit organisation in Australia dedicated to the care and cure of patients and families living with leukaemias, lymphomas, myeloma and related blood disorders.
Lymphoma Australia is a not for profit organisation that was launched in 2004 by a committed group of patients and supporters to address the need for education and support for lymphomas, patients their families and carers. Our current support resources “Living with Lymphoma” a comprehensive and inspirational information guide that assists anyone on their lymphoma journey and “Your Journey of Lymphoma Treatments", a DVD featuring Australian medical specialists talking about the different types of treatments for lymphomas, are supplied free to hospitals, cancer clinics and patients across the nation. Regardless of where you live in Australia information will be available and patients will be empowered to make informed decisions.
Founded in 2011 in Beijing, House 086 is the only organization in China dedicated to collecting lymphoma knowledge and information and serving patients and caregivers. The organisational goal is to enhance patient confidence so they are better equipped to conquer their disease. With the support and participation of many experts and patients, the website and APP can provides information on diagnosis, treatments, etc. and also features a free on-line lymphoma knowledge class. As of the end of 2017, the organization has engaged more than 48,000 lymphoma patients via this platform and cooperated with 50 Chinese hospitals.
The Hong Kong Blood Cancer Foundation is a non-profit charity organization founded by Professor Raymond HS Liang from the Haematology/Oncology Division of Queen Mary Hospital. The Foundation has invited Ms Chan Po Chu as Honorary Ambassador.
V Care Foundation, founded in 1994, is a voluntary support group dedicated to providing free help, hope, awareness and education to cancer patients and their families through outreach programs and services that improve the quality of their lives. Our activities form a significant link between doctors and patients, targeting patients with all types of cancers, ages and gender, from the time of diagnosis through treatment. We have a telephone helpline database for providing information on financial aid, doctors, hospitals and all that a patient may need. Cancer Survivors' Day was started by V Care in India as an annual event to focus on survivorship.
Group Nexus Japan is a non-profit organization for lymphoma patients and their families in Japan with the mission of providing correct information on this disease to the patients/families and the public, in the hope of promoting the medical environment of lymphoma and contributing to making Japan’s healthcare better by empowering the patients.
Founded in 1995 as the gathering of patient with blood cancer, Korea Blood Caner Association(KBCA) today is a non-profit corporation to work toward not only Lymphoma but also other blood diseases patient support and advocacy. KBCA, composed of doctor, member of the National Assembly, minister, lawyer, accountant and more than 200 people of volunteers, strives to give hope, and information to Lymphoma and related blood disorders patients. We focus on providing services to patients and their families, like medical seminar(Open Lecture, Mentoring Program, Phone Seminar, etc), medical bills support, cultural events, and publication. Through the exchange of medical experts and advanced international organizations, we try to do our best to improve the lives of Lymphoma patients.
Leukaemia & Blood Cancer New Zealand is New Zealand's leading resource of information specifically for patients, family members and friends affected by leukaemia and related blood conditions.
Leukemia & Lymphoma Foundation - Singapore Our Vision is to become the leading Healthcare Organization committed to finding cures and saving lives.
A nonprofit organisation whose main objective is to support patients with Hodgkin and non-Hodgkin lymphoma. “Patient empowerment” occurs through contact with cancer survivors, information meetings, and by organising symposiums with doctors. The organisation also engages in advocacy, including policy discussions at both the regional and federal government levels.
Patiëntenvereniging voor Lymfomen offers support to patients and family by providing information and the latest developments in treatment. We organise information sessions, symposia, patient meetings etc. and work together with Hematologists of different University Hospitals in Belgium. We inform patients about events through the website www.lymfklierkanker.be
Bulgarian Lymphoma Association is a non-profit, all volunteer organization which was founded in 2006. It was created to help and support patients affected by lymphoma and their families. It works to raise awareness about lymphoma, to protect human rights of patients with lymphoma, to ensure access to adequate and timely medical care, to provide professional information and emotional support to people touched by lymphoma and their family members. We maintain a website, a Facebook page and libraries for patients in the hematological clinics in Bulgaria.
Croatian Leukemia and Lymphoma Society (Hrvatska udruga leukemija i limfomi – HULL) is the leading Croatian society for haematological patients, their families and caretakers. We are providing help, advocacy and support for patients affected by lymphoma and other haematological diseases in general with an intention to raise awareness about them and to protect human rights of patients with haematological diseases.
Our regular activities are :
- Conducting educational campaigns: ''With knowledge to health'', ''I have one wish only'', ''Make a blood cancer visible''
- Marking the days: World Lymphoma Awareness Day, September 15th, World CML Day, September 22nd, MDS World Awareness Day, October 25th.
- Monthly educational lectures for patients and general public
- Free medical consultations for patients and their families
- Inform the patients by means of educational booklets, our website and Facebook page
Next to Zagreb, where the central office is, we have 6 branch offices in our country (Donji Miholjac, Slavonski Brod, Varaždin, Zadar, Split, Rijeka). These offices provide help for all the patients with haematological diseases in the their region.
LyLe - the organisation for lymphoma, leukemia and MDS patients - is working for patients and their relatives affected by blood cancer, and encouraging dialogue between patients and relatives, who share the same situation in life by the disease as blood cancer. Through local and national meetings and conferences LyLe wishes to spread awareness about blood cancer, how it develops, what kind of treatment is current available and what the future will bring. We are very active on social medias and you'll find videos with patient stories and members meetings.
We publish newsletters, members magazines and special editions focused on each diagnose within lymphoma, leukemia and MDS, which contains practical information and the latest updates of treatment and research, patient stories and interviews with leading haematological specialists.
The European Waldenström’s Macroglobulinemia network (EWMnetwork), is an umbrella organization for WM patient organizations/ groups in Europe, aiming to give WM patients a strong voice within relevant European political and healthcare organisatons. EWMnetwork concentrates its activities around access to treatment and medication as well as access to information on clinical trials and research in Europe.
Association of Cancer Patients in Finland is a non-governmental organisation founded in 1971. The association supports cancer patients and provides information about cancer. It is a member organisation of the Cancer Society of Finland and has a long tradition in patient advocacy. We are the only party in Finland which provides information to patients with lymphoma and chronic lymphocytic leukemia (CLL). We coordinate patient networks which offer peer support to the patients and their kin. In addition, we offer information booklets and networking events. The total number of networks we coordinate is currently 17.
Created in 2006 France Lymphome Espoir is the only French association specialised in supporting Lymphoma patients and caregivers. Our services include a helpline, printed brochures, a complete website with detailed information, educating videos, an exchange forum, a network of nationwide volunteers, conferences.
Our mission is very simple:
- Provide information and education to patients and family. This is done by providing guides for patients in paper form or on our website. We also organize throughout the year small conferences with the help of the local hospital and hematologic service.
- Support, and exchange to improve patient quality of life. This is done with the local conferences and the forum that we provide on our website.
- Contribute to research. This was achieved much faster than expected thanks to the generosity of our members and donators. For the last two years we have been offering one research grants to a young research group project and one to a innovative quality of life project.
SILLC (Soutien et Information Leucémie Lymphoïde Chronique) is a French non-governmental organisation founded in 2007 with the support of haematologists. The association supports CLL and Waldenström patients and provides information about these two diseases. It has a long tradition in patient advocacy in France. The total number of SILLC members is currently 2500. Among other activities, SILLC operates a website delivering up to date medical information, moderates a patient forum, organises local information meetings for the patients, offers information booklets and networking events. On a regional and global level, SILLC is member of Eurordis (European network for rare diseases), CLLAN (worldwide CLL Advocate Network) and Lymphoma Coalition.
Our organization is dedicated to providing support to individuals with leukaemia and lymphoma, including Hodgkin's and non-Hodgkin's lymphoma. We also care about their friends and family, and aim to provide information to anyone who may be impacted by this cancer. Deutsche Leukamie & Lymphom-Hilfe e.V. Bundesverband der Selbsthilfeorganisationen zur Unterstuetzung von Erwachsenen mit Leukaemien und Lymphomen mit ca. 100 angeschlossenen lokalen und spezialisierten Selbsthilfegruppen und -vereinen Schwerpunkte: Hilfe, Information, Interessenvertretung
Since 1991 our organization is serving for patients with all haematological disorders, including leukaemia and lymphoma, Hodgkin's and non-Hodgkin's lymphoma. We also care about their family and friends, providing information by telephone service, monthly meetings, patients and family days and producing brochures.
Formed in November 2016, the organisation supports patients and their families with CLL.
MOHA is a registered, non-profit, non-governmental organization founded in 2014 especially for onco-haematological patients and families. We provide three main kinds of support: patient education, emotional support and patient advocacy. We have different kinds of support groups for patients and families and organize meetings frequently. Our services include free patient education materials, patient seminars, world day events, website and social media.
Our vision is that every person in Ireland will have access to the best possible cancer services, and will have the lowest risk of getting cancer, the highest survival rates and the best support and information available when affected by cancer.
The Leukemia and Lymphoma organization was established in order to make sure that all Leukemia, Lymphoma and blood disease patients in Israel will have access to the most updated information, treatments and monitoring. In addition we will strive to give mental and physical support in order to improve the quality of life of patients and caregivers.
AIL – Italian Association against Leukemia-lymphoma and myeloma is a national non-profit organisation set up in 1969. AIL’s main goals are to promote research, to provide housing assistance, homecare and financial support for those in need, to enhance patients and caregivers awareness. We work to ensure that anyone affected by blood cancer receives the right information, advice and support.
In 2015, the GAL became a non-profit organisation welcoming among its members the extraordinary strength represented by patients with lymphoma. The organisation aims to support the dissemination of knowledge and awareness of lymphoma to support patients and their families.
Linfovita was launched in January 2015 by a group of open mind patients, supporters and hematologists. Linfovita is a not-for-profit organisation that is playing an advocacy role within the country. Our mission is to develop shared projects and provide information about lymphoma in order to raise awareness and help patients and their relatives.
Lymphoma Patient Support Association in Latvia is a group of young, like- minded people. Our meetings are organized in a free and informal atmosphere and workshops are very successful.
Onco-haematological Patients’ Association (OPA) "Blood” is a non-profit organization, founded in 2002, unifying the former and present blood cancer patients, their families and doctors in Lithuania. It's mission is to promote and to contribute towards the development of onco-haematological assistance in Lithuania, to provide accurate information about lymphoma to the patients and their families, and to represent the interests of the OPA “Blood” members. Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ yra nuo 2002 m. veikianti visuomeninė ne pelno siekianti organizacija, vienijanti įvairiomis kraujo vėžio formomis sirgusius ir sergančius ligonius, jų artimuosius, gydytojus ir kitus prijaučiančius. Nuo 2005 m. OHLB “Kraujas” yra Lymphoma Coalition narys. Pagrindinis OHLB „Kraujas“ tikslas - visais būdais prisidėti ir skatinti onkohematologinės ir kitos onkologinės pagalbos plėtotę Lietuvoje bei teikti su ja susijusią patikimą informaciją, atstovauti savo narių interesus ir juos ginti.
HEMA is dedicated to changing outcomes of patients with hematology diseases and support for caregivers by strengthening patient advocacy in this area. It aims to deliver tailored support to patients and caregivers on a national level while joining forces with institutions (Government and non-governmental), physicians and other organisations to review and assist with the reform on healthcare policies and research across the country and provide our patients with current therapies and better quality of life.
Blodkreftforeningen (Norwegian Blood Cancer Association) is focused on creating an organisation that is responsive to patient and carer need. It currently has 7 locations, over 1500 members across Norway, and offers a variety of educational and support programs.
Hematon Nederland, bloedkanker, lymfklierkanker en stamceltransplantatie www.hematon.nl
The Polish Lymphoma Association - Owl Eyes -(PLA) was founded in 2005 by Pawel Moszumadski,lymphoma survivor. The purpose of the PLA is to support people touched by lymphomas (both patients and families) and to establish close cooperation with the healthcare community.
A Associação Portuguesa Contra a Leucemia (APCL) foi fundada em janeiro de 2002 em resultado da iniciativa de um conjunto de doentes que sobreviveram a patologias do foro Hemato-Oncológico (Leucemias e Linfomas) e de um grupo de médicos do Instituto Português de Oncologia Francisco Gentil (IPOFG) de Lisboa que os trataram.
A principal motivação dos Fundadores da APCL radicou na sua compreensão da importância de consciencializar e mobilizar a sociedade civil no apoio a todos os que diariamente lutam contra a devastadora doença que é a Leucemia.
A APCL tem como missão contribuir, a nível nacional, para aumentar a eficácia do tratamento das Leucemias e outras neoplasias hematológicas afins.
A "Associação Portuguesa de Leucemias e Linfomas" (APLL) é uma Associação sem fins lucrativos, constituída por doentes e familiares, profissionais de saúde e voluntários.
O que fazemos
• Apoiar os doentes e os seus familiares (Informação, Financeiro e Psicológico)
• Divulgar junto da sociedade civil e colaborar com instituições afins
• Participar em reuniões, congressos, divulgar e partilhar conhecimentos
Portugal - MoleculeJourney – Associação Patient Advocacy
Founded in 2018.
ARiL is a non-profit organisation set up in 2006. Our main goal is to improve the treatment conditions and the quality of life of Romanian onco-hematological (blood cancer) patients.
• Psychological/emotional support to patients and families.
• Provide accurate information and education about all types of blood cancer, including diagnosis, treatments, hygiene and nutrition during and after chemotherapy and bone marrow transplants.
• Advocacy campaigns to change regulations to allow faster access to new therapies.
• Funding for research, diagnostic equipment and appropriate treatment.
• Support community - over fifty survivors who share their experiences with cancer.
• Cooperation with medical experts from Romania and abroad.
Association of patients with lymphoma was established in 2006 in Belgrade. This is an association for the fight against lymphoma, with the main objectives to provide support and information to people who are suffering from lymphoma, as well as their family members, exchange of experience between members as well as information with similar organizations at home and abroad. Raising the level of information about lymphoma and the importance of timely and accurate diagnosis; advocate for the rights of patients with lymphoma; and organize educational forums.
Lymfoma Slovensko (LS) focuses on increasing awareness of the diagnosis of malignant lymphoma among patients, their relatives but also the general public and medical experts. LS provides access to current information from domestic and foreign sources, covering the options for treatment and recommendations and concrete projects for patients on how to improve their quality of life. LS closely cooperates with medical experts and most recognized cancer institutes in Slovakia. LS is present in all regions of Slovakia, where they advise regional and local patient groups.
Founded in 2002, AEAL is the non-profit Spanish Association for Lymphoma, Myeloma, and Leukaemia patients, providing information (on the diagnosis, treatment and care), support and direct services for all blood cancer patients and their families. AEAL represent the interests and defends the rights of haematological cancer patients at National, European and International level. A single voice to communicate with social agents and health systems. AEAL aims to ensure that haematological cancer patients have timely and affordable access to the best treatment and care available throughout their life, to improve early diagnosis of haematological cancer, to increase the quality of life of those affected by haematological cancer patients, families, caregivers and relatives, empowering patients to make informed decisions. AEAL is a nation-wide association declared of Public Utility by the Government of Spain. Our direct services include psycho-oncologist, transplant preparation, physical rehabilitation, legal assistance, social work interventions, among others.
THE SWEDISH BLOOD CANCER ASSOCIATION is a non-profit, politically- and religiously independent organization built on democratic principles. We have approximately 4 000 members spread out on 14 local organizations spread all across the country. Our main purpose is to foster the needs of those affected by blood cancer or other serious blood diseases. Our mission consists of 3 pillars; good/equivalent treatment to everybody in Sweden with a blood cancer disease (independent of where they live), to increase knowledge of how it is to live in Sweden today with blood cancer and to promote research within the field of hematology. We also dispose over a fund - ”The Blood Cancer Fund”, that three times a year distributes grants to the field of hematology.
lymphome.ch Patientennetz Schweiz is a non-profit, all volunteer organisation which was formed-up in 2001. The purpose is to raise Awareness about lymphoma (symptoms, disease) to everyone and to provide professional information and emotional support to people touched by lymphoma and their family members. (ho/noho) ist eine ehrenamtlich geleitete Non-Profit-Organisation, die 2001 entstand. Ziel und Zweck ist es, den Symptomen und der Krankheit ‚Lymphom’ (Lymphdrüsen-krebs) mehr Aufmerksamkeit zu schenken, und professionelle Informationen sowie emotionale Unterstützung an Menschen zu vermitteln, die von einem Lymphom betroffen sind, aber auch an Ihre Angehörigen.
BIRKAN is a non-profit charity that offers cancer-friendly patients and their relatives with solutions that will make life easier. KANKO Cancer Coalition is a platform created by non-governmental organizations that aim to create cancer awareness in the community.
The main goal of our Association is to provide patients with lymphoproliferative disorders with information regarding their diagnosis, methods of treatment, possible complications and their prevention. Also important direction is to give patients emotional and if possible financial support based on charity concerts and exhibitions. Основная цель нашей Ассоциации - это предоставление пациентам с лимфопролиферативными заболеваниями информации относительно их диагноза, методов лечения, осложнений лечения и их профилактики. Также важным направлением является эмоциональная и по возможности финансовая поддержка пациентов путем проведения благотворительных концертов и выставок.
Leukaemia CARE was established in 1967 and exists to provide vital care and support to all those whose lives are affected by leukaemia, lymphomas and the allied blood disorders.
Lymphoma Action is the only UK charity specialising in the provision of information and support to anyone affected by lymphoma, whether as a patient, carer, family member or friend. Our services include a helpline, a wide range of free patient literature, buddy scheme, local support groups, patient conferences and an interactive website. We also work closely with health professionals, providing them with free literature to give to patients and we host two nurse education days each year.
Originally founded in February 2002 as the Myeloma Foundation and Support Group of Barbados, we broadened our scope in May of that year to include Lymphoma and Leukaemia and became known as The Myeloma, Lymphoma and Leukaemia Foundation of Barbados. We are registered as Charity #579.
The Foundation finds its genesis in the fact that the experiences and needs of persons afflicted with blood related cancers are extremely complex and far more unique than those afflicted with more well-known cancers.
Lymphoma Canada is the only Canadian charitable, not for profit organization that is dedicated to serving the Canadian lymphoma community. It focuses on all lymphomas including CLL, Hodgkin and non-Hodgkin lymphomas, providing information on new treatment options, research and patient education events to help the lymphoma community understand and partner in their care.
Mexico - Asociación Gerardo Alfaro Mexico
The mission of Asociación Gerardo Alfaro A.C (AGA), is to spread awareness of the symptoms of Lymphoma for its early detection and possible treatment,increasing the possibility of survival and/or healing; as well as the support and orientation of patients with a confirmed diagnosis. La misión de la Asociación Gerardo Alfaro A.C (AGA), es difundir los síntomas del cáncer linfático para su detección y tratamiento oportuno, incrementando la posibilidad de supervivencia y/o curación de quienes lo padecen; así como el apoyo y orientación a pacientes mayores de 15 años, con un diagnóstico confirmado.
The objectives of Funalinh is to provide all class of emotional and psychological support to patients and relatives of sectors and regions of limited resources, indigenous communities and vulnerable groups to provide better quality of life.
Founded in 1944, CancerCare® is the leading national organization providing free support services and information to help people manage the emotional, practical and financial challenges of cancer. Our comprehensive services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All CancerCare services are provided by professional oncology social workers.
CancerCare helps 1,000,000 people each year throughout the U.S. and distributes more than $30 million in financial and co-payment assistance. The size and scope of CancerCare has grown tremendously since 1944, but the mission remains the same—to provide help and hope to anyone affected by cancer.
To learn more, visit www.cancercare.org or call 800-813-HOPE (4673).
The CLL Society Inc. (CLLS) is a patient-driven, physician-curated CLL education and support nonprofit organization.
The Cutaneous Lymphoma Foundation USA is an independent, non-profit patient advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research.
T-Cell Leukemia Lymphoma Foundation devotes its time and resources to providing patients and family members affected by these rare malignancies with education about their disease. We host and co-host (with our partners CLF and LRF) multiple T-cell lymphoma patient educational forums throughout the country.
The IWMF is a non-profit, all-volunteer organization, developed and financed largely by patients with the rare lymphoma disease, Waldenstrom's macroglobulinemia, and their friends and families.
The Leukemia & Lymphoma Society, USA, is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services.
Patients Against Lymphoma (PAL) provides support and independent evidence-based information on lymphoma and its treatments through online resources, primarily wwww.lymphomation.org. Its goal is to help patients to become informed partners in their care and to advance the routine consideration of clinical trials, which are essential to making progress against lymphoma.
Linfomas Argentina is a non-for-profit organization whose mission is providing information and guidance to lymphoma patients, their relatives and caregivers so that they can have a better understanding of their cancer and live through it with dignity.
ABRALE is a Non-profit organization which operates nationally in Brazil. It was established in September 2002 by patients and their families to adequately inform and offer support to lymphoma and leukemia patients, mobilizing and creating partnerships so that the best treatment is available to all patients in our country. H0 quase quatro anos, quem recebia o diagno stico de linfoma e leucemia no Brasil tinha poucas alternativas para saber mais sobre a doenoa. Alom disso, nem todos os pacientes tinham acesso a um tratamento de qualidade.
La Fundación Colombiana de LEUCEMIA Y LINFOMA (FCL) nace en Junio de 2007 por iniciativa de Yolima Méndez Camacho, quien como Psicóloga conoce la problemática de los pacientes con Leucemia y sus familias en el país y se acerca a sus necesidades emocionales, psicosociales, de información y apoyo; además motivada con el trabajo realizado por otras Organizaciones similares en Latinoamérica, decide iniciar un proyecto que mediante diversos programas y servicios, se convie rta en la primeraopción de orientación y soporte para Niños y Adultos diagnosticados con estas patologías, sus familias y cuidadores. A la Fundadora se unen inicialmente dos fundadores adherentes, uno de ellos Vanessa Sánchez Barrios, sobreviviente de Leucemia…. ejemplo de lucha y vida.
Grupo Linfoma Uruguay is a Non Profit Support Group which gives help not only to people with lymphoma but also to their relatives and friends. Asociación civil sin fines de lucro para personas con linfoma, familiares y amigos.
Es la Fundación que apoya gratuitamente a los pacientes con leucemia, linfomas y enfermedades graves de la sangre y, además, a sus familiares. Por tratarse de personas que se asisten en ASSE, gran parte de ellos pertenecen a franjas sociales carenciadas económicamente. El Servicio de Hematología del Hospital Maciel es el único que atiende a estos pacientes en todo el Uruguay, en el marco de ASSE
Venezuela - Fundahog
Venezuela Fundación Hemato-Oncológica Guyana (Fundahog)
Brindar apoyo integral a Pacientes con Linfoma y sus familiares, antes,durante y posterior al tratamiento. Ser parte integral en la mejoroa de la calidad de vida y servir de referencia a otras organizaciones.